In the first two blogs of this series, I highlighted resources specific to those living with young adult cancer. Resources tailored to this population are important because they help young people to build a community of people who understand the rare experience that they are going through and provide health information specific to their unique needs. However, if you are a caregiver of an adolescent or young adult (AYA; 15-39 years of age) living with cancer, then you may be facing unique challenges and feeling isolated, yourself.
Previously, I listed tips for caregivers to help avoid burnout. Caregiving can provide a lot of meaning for people, but it can also be challenging as well. Caregiving for an AYA may mean that you have encountered unique challenges because they are accessing health systems that are designed for patients much younger or older than them. These tips are to serve as starting points to navigating your well-being and are meant to encourage you to seek educational and supportive caregiving resources. Accessing practical knowledge can arm you with the information you need to develop caregiving skills, community and ultimately, take better care of yourself. The following seven resources have offerings specifically for those caregiving for cancer patients:
1. Queering Cancer: This Canadian group provides LGBTQ2+ community resources specifically for caregivers.
2. Young Adult Cancer Canada: This Canadian organization currently features profiles of AYA cancer supporters and often has offerings specifically for the caregiving community.
3. Pink Pearl Canada: This Canadian organization offers a Family Support Day.
4. First Descents: First Descents is an American-based organization that offers outdoor adventures for young adults impacted by cancer and other serious health conditions. They also have an offering for caregivers in 2024.
5. Stupid Cancer: Stupid Cancer’s discussion series in November is focused on caregivers. There are several offerings all geared to addressing the needs of young adult cancer caregivers.
6. Imerman Angels: This American-based organization’s mission is to provide free personalized one-on-one cancer support for cancer fighters, survivors, previvors and caregivers.
7. #AYACSM (Adolescent and Young Adult Cancer Societal Movement): #AYACSM is used to group and connect AYA content on all social media platforms, and often includes content that is for caregivers of those living with an AYA cancer.
Photo by Mikhail Nilov
